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MPS Society | Support for Families. Research for a Cure.
SACFAC Fall 2012 – Let us Run for Your Loved One!. Does someone you love need a cure?. 2012 National MPS Society Family Conference. Give to the Annual Fund: Chair Kim Whitecotton. Ask Me About PwP. Home. About MPS. The Annual Fund celebrates our 11th year of giving!. News. Upcoming Events. Get In...
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Leukodystrophy & Krabbe Newborn Screening Awareness | Hunter's Hope
Hunter's Hope Foundation is a non-profit organization committed to family and medical care for those affected by Leukodystrophy and Newborn Screening. Visit our site for more information.
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Galactosaemia Support Group – UK
GSG UK. 1. Donation. 2. Research. 4. Support. 3. Teaching. Donation. Research. Teaching. Support. Newly Diagnosed. Professionals. Schools. Newly Diagnosed. Professionals. Schools. Donate To The GSG. Contact Us. Latest Product News. Let's Get Social. Galactosaemia literally means ‘galactose in the...
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Homepage - Cardiomyopathy UK
Homepage of Cardiomyopathy UK the heart muscle charity website
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Jacob's Reach
NIEMANN-PICK DISEASE public awareness campaign in honor of Jacob Quinn DeMeis Dullea in support of medical research foundations
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EURORDIS - The Voice of Rare Disease Patients in Europe
EURORDIS - Rare Diseases Europe, is a non-governmental patient-driven alliance of rare disease patient organisations representing 864 rare diseases patient organisations in 70 countries. We are dedicated to improving the quality of life of all people living with rare diseases in Europe
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Allies in Rare Disease - Global Genes
Global Genes mission is to connect, empower and inspire the rare disease community. Learn more about our events, resources and communities.
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Advocacy, Education & Empowerment | GeneticAlliance.org
Advocacy, Education & Empowerment. Search form. Genetic Alliance and LunaPBC Partnership. Luminary Award. Consumer-Driven and DIY Science. PEER. Highlights. Advocacy-Led Research. Expecting Health. Stakeholder Engagement. Genetic Alliance Internship Program. Sign Up For Our Mailing Lists!. Diseas...
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Hypertrophic Cardiomyopathy Association
Serving the HCM Spectrum Disorder Community Since 1996. Member Login. Welcome to the HCMA. Survey Opportunity. Find An HCM Center. Recent News. Calendar Events. E-Newsletter and Info Packet request. Stay in Touch. Current HCMA Fundraisers can be found on our Fundraising Opportunity Page. Invitae ...
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National Niemann-Pick Disease Foundation, Inc|Promoting Research & Supporting Families
ASMD Update. Message from the Executive Director. INPDA October 2019 Newsletter. NNPDF Emergency Hardship Program. NPC Update. Message from the Executive Director. INPDA October 2019 Newsletter. Message from NNPDF about Mallinckrodt Phase 2b/3 Study VTS301. Most recent articles. ANNOUNCEMENT FROM...
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SADS - SADS Foundation
The Sudden Arrhythmia Death Syndromes Foundation works to save the lives and support the families of young people with hereditary heart rhythm disorders.
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National Gaucher Foundation | Gaucher Disease - Symptoms, Treatment, & Education
Gaucher disease is a genetic disorder and affects the body's organs and tissues. Learn about Gaucher disease symptoms, testing and treatments.
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Cystinosis Research Network
Making Lives Better Starts Here. Support. Research. Education and Awareness. Welcome to the Cystinosis Research Network. 2019 Family Conference. Health Care Professionals. News. Resources. Join the community. New. New. Newly Diagnosed. Education. Research Developments. Sign Up for Our Newsletter....
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Childrens Gaucher Research Fund | a 501(c)(3) charitable organization that raises funds to coordinate and support research to find a cure for Type ...
Gaucher Progress – Parkinson’s Progress … Tony Futerman PhD. New Therapeutic Targets … Ricardo A. Feldman PhD. Funds Important Research">Sanofi Genzyme Funds Important Research. Phase 2 Clinical Trial">Sanofi Genzyme Phase 2 Clinical Trial. …funded by CGRF">Important Scientific Discovery …funded ...
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MEASURE DHS - Quality information to plan, monitor and improve population, health, and nutrition programs
MEASURE DHS assists developing countries worldwide in the collection and use of data to monitor and evaluate population, health, and nutrition programs.
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United Leukodystrophy FoundationUnited Leukodystrophy Foundation
ULF Mourns the Passing of a Dear Friend. Paula K. Brazeal, 63 of Sycamore died Saturday, September 22, 2012 at the Valley West Hospital in Sandwich.
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Fabry Community
Learn the facts about Fabry disease including causes, symptoms, Fabry disease in women, and why family members should be tested for Fabry disease.
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The Myelin Project, Funding Myelin Research since 1989 Home
We are a 501(c)3 international non-profit aimed at funding research into treatments for demyelinating diseases such as ALD and AMN.
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Ehlers-Danlos National Foundation
The Ehlers-Danlos National Foundation provides information about Ehlers-Danlos Syndrome and support to people with EDS and related disorders.
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NTSAD Home Page
Tay-Sachs | Canavan | GM-1 | Sandhoff - info, support, and research for a cure of these genetic diseases
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Boys Town National Research Hospital
Search for news, content, and more.. Life-Changing Care backed by 40 years of translational research. Clinical Services. What's New. Upcoming Classes & Events. Sign Up for Our Healthy Children Newsletter. Pediatric General and Thoracic Surgery Expansion
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The MAGIC Foundation magic foundation
Magic foundation,growth,hormone,medical,children,deficiency,syndrome,parents,gestational,adrenal,russellsilver,turner,grow,adults,short
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American Society for Deaf Children - Home
American Society for Deaf Children. Featured Stories. Latest News. Popular Articles. Please send me more information about ASDC. What People Are Saying. Support Your Children. About American Society for Deaf Children. Get connected with us. ASDC Family Survey. OUR CHILDREN ARE OUR FUTURE. Early A...
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Welcome to NORD — National Organization for Rare Disorders
Welcome to NORD. News and Events. News for Patients. News for Patient Organizations. News for Medical Professionals. News for Industry. Latest from Rare Disease Dialog. Featured Member Organization. Patient Spotlight. Event. Sections. Skip to content. | Skip to navigation. NORD Issues Statement o...
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Cholesterol - You Can't Live Without It!
Cholesterol-And-Health.Com has been completely redesigned! Check it out!
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Fabrazyme® (agalsidase beta) | ERT for Fabry Disease
Fabrazyme helps people affected by Fabry disease by replacing a missing enzyme. Fabrazyme has been used to treat people with Fabry disease for over 15 years and is backed by the safety and effectiveness shown in clinical studies.
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Obesity Discussion
Obesity, Diet, Weight Loss Forum, Support Groups, Blogs
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Genzyme Corporate Homepage
Genzyme has pioneered the development and delivery of transformative therapies for patients affected by rare and debilitating diseases for over 30 years.
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Cystic Fibrosis Foundation - Home
Cystic Fibrosis Foundation, Home
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The National Kidney Foundation, Inc.
Featured Story. Featured Story. Featured Story. Featured Story. Featured Story. Featured Story. Featured Story. Top News: NKF Collaborates with the U.S. FDA to Enhance the Development of Effective Treatments for Kidney Disease. Ask the Doctor. Are you a dialysis patient?. Be an Organ Donor. GFR. ...
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